Diabetes Won't Stop Rial
I'm here for a cause that is near & dear to my heart, TO STOP JUVENILE DIABETES. Type 1 diabetes is an autoimmune disease in which the body's immune system attacks and destroys the insulin-producing cells of the pancreas. While its causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers are involved. My son was diagnosed at age 9, very scary times have now lead me to fight for my son and anyone else effected by this disease.
Monday, September 19, 2011
Athletes with Type 1 Diabetes
Wasim Akram was diagnosed with diabetes at the peak of his career but depite the initial blow, he managed to regain his form and went on to produce fine cricketing performances. Since then he has actively sought to be involved in various awareness-raising campaigns for diabetes.
A Canadian native, Byle first received public attention as a result of his tireless efforts to organize his nationwide run, Dash for Diabetes, in 1997. Despite taking five insulin shots per day and managing a strict athletic diet, Byle managed to run over 6000 km across Canada, proving exactly how much a person with diabetes is capable of.
Nick Boynton played for the Boston Bruins prior to joining the Phoenix Coyotes. He was drafted in the 1999 NHL Entry Draft by Boston (he was orininally drafted bu the Washington Capitals in the 1997 NHL Entry Draft) Shortly before his first training camp, he was diagnosed with Type 1 Diabetes but the diease has no affted his ability to play hockey.
He has also created a video: Advise for young Athletes with Type 1
Doug Burns is an internationally repected fitness consultant and record-holding strength athlete. Doug has also had type 1 diabetes since the age of seven. Initially misdiagnosed with the flu, Doug's health quickly declined until he was brought to the emergency room with ketoacidosis and a blood sugar over 700.
Champion snowboarder Sean Busby, 21, is in training for the 2010-2014 Olympics. As a nationally ranked snowboarder, Busby is known for his events in Slalom and Giant Slalom. Although he has only been snowboarding professionally for a few years, his dedication and determination as an athlete and an individual has brought him to the top of his game. To this day Sean has not let his disease defeat him. "Diabetes has tried very hard to stop me from being an athlete," he said. "It will continue to do that, but it will never win. This friend that will remain with me for the rest of my life until a cure is found is not going to determine how I live my life."
Jay Cutler began his career in the NFL as the 11th pick of the 2006 draft for the Denver Broncos and is currently with the Chicago Bears. On May 1, 2008 Jay Cutler revealed that he had been diagnosed with Type 1 Diabetes and would need daily insulin shots for treatment.
Missy Foy is an extremely well-known long distance runner who was diagnosed with Type 1 diabetes at the age of 33. Her most outstanding accomplishment was in 2000 when she became the first athlete with diabetes to qualify for the Olympic Marathan trails. In 2005 she was ranked #1 world ranking for a 50-mile trail race.
Professional surfer Scott Dunton was hit by a major wave at the age of 16 when he was diagnosed with type 1 diabetes. Living the typical teen-age life, he had to learn how to take control of this new disease and in doing so,, take control of his health and his life. Scott is now ranked 119 by the professional World Tour of Surfing. When the Hawaii resident isn't surfing, he's golfing, hunting, or traveling.
Throughout all of Gary Hall Jr. success in swimming he has had to struggle with keeping you with his type 1 diabetes. hall was diagnosed in 1999 and was faced with a decision whether or not to give up on his career. Hall did stop swimming for a short while after being diagnosed, he quickly came back to the game to break a world record in the men's 50-meter freestyle race with a time of 21.76 at the 2000 Olympic Games.
These are just some people who have gone on to do great things regardless of having Type 1 Diabetes. They just know what they have to do, they understand how their bodies react in certain situations and take it from there.
SPECIAL MESSAGE: I know you can be anything you want to be, YOU just have to have the drive, determination & heart to do it!
-Nessa
Tuesday, August 23, 2011
Type 1 Emergency Planning
We all know that a child with T1 his/hers blood sugar can drop in a instant due to stress, this is why it is utterly important to talk with your child and school to come up with a emergency plan. This situation should already be on your 504 plan, if you do not have one, PLEASE make one, if you have one, PLEASE make sure it has an emergency plan stated.
What is a 504 plan? It is legal documentation that the public school system MUST avid by, this plan is worked out by the parents/schooling system to make sure your T1 child's needs are met. Some examples from our 504 are, BS testing before major tests, to ensure glucose levels are within normal range, if not, allows for more time to take the test. Snack schedules, breaks for water, etc... I can't stress enough that 504 plans are absolutely necessary. If you have not created a 504 plan for your child and would like to find out more information, please visit: http://www.jdrf.org/index.cfm?page_id=103474
Now..... back to emergency planning, in today's world it's unfortunately not to unimaginable to have some sort of disaster. I mean.... we see it everyday on the news, unlikely, but still a probability. I know I would like to be prepared for it. How about you? So here are some guidelines to help you prepare & hopefully you will never have to use.
In an evacuation situation, school nurses are trained to carry an emergency backpack with health paperwork and supplies. However, what if your class in on lock-down? This leaves 1 or 2 scared teachers with 15-20 scared students. This is where your planning can make a HUGE difference in your T1 child's safety.
Here is what I purpose:
- Sit down with your spouse (or friend) and devise a written plan. Make sure you two have thought of every possible scenario. School lock-down (ability to be with the nurse), Classroom lock-down (only with teacher or even a substitute) Fire alarm, staying outside in the hot/cold weather, Earthquake (in these events especially us here on the east coast, we have no experience with this, so everyone is in freak out mode).
- This plan should include supplies your child should have with them at all times (i.e. BS monitor, test strips, glucagon, insulin, syringes, snacks, water) emergency numbers, maybe even a note that they are not to open unless there is an emergency, within the note make it short, sweet & to the point. "Stay calm, remember all we talked about and you will be just fine, love you!"
- Now hoping your child is old enough to understand, (if not I highly recommend taking this written plan to the teacher & make sure he/she keeps it out for any substitute with a picture of your child so he/she is easily identified) (Props to Teresa on Stop Juvenile Diabetes FB page for the picture suggestion) talk to your child, explain these possible scenarios, tell them your written plan & put a more simplified written plan & all supplies and all the above in their backpack.
- TALK...TALK...TALK to your child about this over & over again, once a week, once a month at most, so if this ever becomes a reality your child will remember what he/she must do.
- Find a friend in class that he/she can stick with just in case of these emergencies & tell them some of the signs on low blood sugar so they can help in anyway. My son is 10 & I understand this method can't be used for all, but a friend regardless of understanding or not is always a secured method, feeling of not being alone.
Tuesday, August 17, 2010
Back to school!
Well I must say, I am readdddddy for the kids to go back to school. Summer used to be so easy (expensive.......but still easy in hindsight) but now it is a real strain on the family. Since Rial has been diagnosed trying to find places for him and Nico to go to summer camp together and still Rial gets the proper looking after has been a chore to say the least. All the summer camps by us are run by young teens and diabetes camps are outrageously expensive. UGH. Although i will say i was not as prepared as I should have been, but then again who is really all that prepared when you find out your kid has Type 1 diabetes? Hopefully next year will be better, I will know what to look for, ask for help when needed and hopefully get a couple of good leads for the Maryland area. ( I will keep you updated)
Wednesday, May 19, 2010
Food!
As most of you I'm sure are aware food is our number one weakness or at least it is mine. However, I am not a Diabetic but my son is. He is on a strict plan the Doctors have deemed fit for him 40-55g carbs for Breakfast, Lunch and Dinner and 25-30g carbs for snacks. Now, before I have always considered myself semi-healthy mom, since I never had to worry about it. My kids are all very active and have a blazing fast metabolism (lil devils!) which has always worked quite well for me in the past, if they ate pizza I know with in a hour they would have burned about 20% of those carbs & calories. I did and have not ever made it a habit to only give my children pizza but did think of it as a treat on the Fridays I got paid.
Tuesday, May 18, 2010
A mother & son shocker
In April 2010, my first born son who is 9 started to use the bathroom very urgently and was also going in his bed at night, he was drinking like a fish and I just didn't know what was wrong. At first I thought he was under the weather and didn't think much else of it. Then more symptoms started kicking in, he was starving all of the time and had this fruity smell to him, which come to find out later that is the tall tale sign of Diabetes. I took him to the doctor, they ran some test’s and got the worst phone call and mother can get. "Ma'am, you have to take Rial in to the hospital asap, I'm afraid to tell you but your son's blood sugar levels are around 600 (a normal persons is between 70-120) and we think he has Diabetes."
Now coming from families that have no history of Diabetes, I didn't know what to do. I rushed him to Children's Hospital in DC and all sorts of things were running through my mind. Mind you, I had no idea between the difference of Type 1 or Type 2 Diabetes, I just thought it was people that did not take care of themselves and really ignorantly never gave it more thought. I thought, what did I do? Did I feed him too much McDonald's? Was I not healthy enough? Was it the swine flu shot that made him this way? I was just a mess, and my son Rial was just as scared and asking a million questions I did not have answers for.
My eternal D-Day was on March 26th, 2010, we are in the emergency room and the nurses are running around taking blood samples, putting my baby on an IV. Then someone from the Endocrinology department comes to his bed side and lets me know that Rial does in fact have Type 1 Diabetes and saying that we were very lucky to have caught it when we did since he could have gone into DKA (Diabetic ketoacidosis) which can lead to severe illness or death if diagnosis is delayed. So we are admitted to the hospital and taken to our own room. I proceed to ask them questions, exactly all the ones that were running through my mind on the drive there. They very quickly brought me back down to reality and let me know it was nothing I did, nothing I could have done would have prevented this. Let me just say that no matter how many times I was told this in the hospital, there will always be a sense of guilt, since I am his mother, I am the one who is supposed to prevent these sorts of things from occurring. So we stay in the hospital for a couple of days until he is better and we learn all we need to know about Insulin, proper way to use needles, blood sugar tests, his eating habits, what is healthy and not healthy. All this information to take in and all coming from no knowledge once so ever, but willing to know everything I can to help Rial and take away any anxiousness he may feel.
Today Rial is doing great! We have been living with Diabetes for 2 months and he is in his honeymoon stage (which means his body is producing its own insulin) he still has a lot of lows in the morning which Children’s Hospital and I are working very hard to treat this on a day by day basis. He went from having 3 shots a day to only having one. When we we’re in the hospital they said this may happen and it’s hard to determine how long it will last but happy it’s lasted this long. Rial is a very active kid; he plays all sorts of sports from football, soccer, basketball etc…. He always tells me “Mom, why is this happening to me?” I tell him, “It’s not only happening to you, it’s happening to many children & adults across the world and now that we are educated about it we can help spread the word so nobody has to feel alone, feel sorry for themselves or be down in any way since we will do anything and everything to help FIND A CURE!”
As I was writing this letter I have tears streaming down my face but not since I feel sorry for myself, or have pity for my son but because as a mother you just want them to be healthy. You know.... The feeling before your about to have a baby and others ask you “what do you want, a boy or a girl?” and all you can say is “I don’t really care as long and he/she is healthy!” Well that’s just how I feel, I just want healthy children and when something comprises that you just want to SCREAM. So this is me screaming to the world; learn, act and help stop diabetes.